December 9, 2019

Legislation Introduced to Prevent Data Mining of Personal Health Data Stored on Wearable Devices

From Sen. Bill Cassidy (R-LA):

U.S. Senators Bill Cassidy, M.D. (R-LA) and Jacky Rosen (D-NV) today introduced legislation to prevent data mining of Americans’ personal health data stored on wearable personal devices, such as smartwatches.

The bill comes amid renewed concerns of Google’s plans to buy Fitbit in light of recent reports that Google has partnered with Ascension to secretly harvest the nonanonymized private health data of millions of Americans. The actions of Google and Ascension raise questions about how Google and other companies would use data collected from smart device users.

The Health Insurance Portability and Accountability Act (HIPAA) protects all interactions between patients and their doctors. HIPAA does not protect health data recorded on personal devices.

The Stop Marketing And Revealing the Wearables And Trackers Consumer Health Data Act (Smartwatch Data Act) defines what data is protected under the law. The bill would prevent entities that collect consumer health information from transferring, selling, sharing or allowing access to consumer health information or any individually identifiable consumer health information collected on personal health trackers. Violations of the new act would be enforced by the Department of Health and Human Services in the same manner the department enforces HIPAA.

Media Coverage

Lawmakers are Trying to Stop Google From Gobbling Up Your Health Data (via Mashable)

Gary Price About Gary Price

Gary Price (gprice@mediasourceinc.com) is a librarian, writer, consultant, and frequent conference speaker based in the Washington D.C. metro area. Before launching INFOdocket, Price and Shirl Kennedy were the founders and senior editors at ResourceShelf and DocuTicker for 10 years. From 2006-2009 he was Director of Online Information Services at Ask.com, and is currently a contributing editor at Search Engine Land.

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