From a Joint Announcement:
The Future of Privacy Forum (FPF) and the Information Accountability Foundation (IAF) partnered to form the FPF-IAF Joint Health Initiative in 2018. Today, the Initiative is releasing A Taxonomy of Definitions for the Health Data Ecosystem; the publication is intended to enable a more nuanced, accurate, and common understanding of the current state of the health data ecosystem. The Taxonomy outlines the established and emerging language of the health data ecosystem.
The Taxonomy includes definitions of:
- The stakeholders currently involved in the health data ecosystem and examples of each;
- The common and emerging data types that are being collected, used, and shared across the health data ecosystem;
- The purposes for which data types are used in the health data ecosystem; and
- The types of actions that are now being performed and which we anticipate will be performed on datasets as the ecosystem evolves and expands.
This report is as an educational resource that will enable a deeper understanding of the current landscape of stakeholders and data types. We hope it will be valuable as a common, reference language for the evolving health ecosystem.
Read the Complete Publication Announcement
Direct to Full Text: A Taxonomy of Definitions for the Health Data Ecosystem
42 pages; PDF.